Konferenz

International Conference
12. – 13. September 2024
University of Siegen
Raum AH-A 217/18 (Herrengarten)

People with chronic illnesses frequently utilise medical and media technologies to enhance or restore their quality of life. At the international conference “Popular Health & Social Media”, we seek to explore the diverse topics at the intersection of health and technology. Our first focus is on “(Self-)Tracking of Health and Illness”, particularly in chronic conditions such as back pain and diabetes. We are interested in the role of numbers and data, as well as the circumstances surrounding their generation. The second theme, “Medical Lay and Expert Knowledge on Social Media”, will explore examples such as weight loss groups on Facebook and networks for ADHD/ADD, where information and experiences are exchanged via social media. These platforms facilitate peer-patient connections, underscoring the importance of sharing lay and expert knowledge within the digital sphere. A third panel, “Health Activism in the Digital Era”, will examine the visibility and invisibility of disabled and chronically ill individuals on social media. Digital-era activism is prominently visible through hashtag and device activism, particularly on platforms like Twitter and Instagram, where, for example, breast cancer patients share their stories. The conference will serve as a forum to explore how individual communities are reshaping their everyday realities through digital practices and technologies, and to discuss the various roles social media plays in the context of health and illness.

Registration

To attend the conference, please send an email to Ann Kristin Augst (kristin.augst[at]tu-dortmund.de) by 5 September 2024.

Programm

12.09.24

09:00 – 09:15

Regis­tra­tion

12.09.24

09:15 – 09:30

Welcome

12.09.24

Panel I:
(Self-)Tracking Health and Illness

Chair: Corne­lius Schu­bert (Dort­mund, D)

12.09.24

09:30 – 10:35

Rachael Kent (London, UK)

The Digi­tal Health Self: Well­ness, Tracking and Social Media

12.09.24

10:35 – 10:50

Coffee Break

12.09.24

10:50 – 11:35

Amelie Lange (Lingby, DK)

Tracking beyond Treat­ment: Making Sense of Chro­nic Pain

12.09.24

11:35 – 12:20

Sophie Wagner (Bern, CH)

Chro­nic living with arti­fi­cial intel­li­gence: the promi­ses and (new) vulne­ra­bi­li­ties of semi-auto­ma­ted blood-sugar moni­to­ring

12.09.24

12:20 – 12:45

Joint Discus­sion

12.09.24

12:45 – 14:15

Lunch Break

12.09.24

Panel II:
Medical Lay and Expert Knowledge on Social Media

Chair: Ann Kris­tin Augst (Dort­mund, D)

12.09.24

14:15 – 15:20

Amanda Karls­son (Aarhus, DK)

Peer-pati­enthood on social media: the inter­play of illness, know­ledge and plat­for­med affor­dan­ces

12.09.24

15:20 – 15:35

Coffee Break

12.09.24

15:35 – 16:20

Varvara Bori­sova (Prague, CZ)
Samuel Csanda (Prague, CZ)

‘Are you a phar­ma­cist or some­thing?’: perfor­ming medi­cal and expe­ri­en­tial autho­rity in Czech weight loss Face­book groups

12.09.24

16:20 – 17:05

Jaya Mathur (New Delhi, IND)

Betwixt and Between Medi­cal Exper­tise: Explo­ring the Networ­ked Life of ADHD/ADD in India

12.09.24

17:05 – 17:30

Joint Discus­sion

12.09.24

19:00

Confe­rence Dinner

13.09.24

09:00 – 09:15

Coffee

13.09.24

Panel III:
Health Activism in the Digital Era

Chair: Julia Kurz (Dort­mund, D)

13.09.24

09:15 – 10:20

Bianca Jansky (Augs­burg, D)

Digi­tal pati­ent parti­ci­pa­tion: between hash­tag acti­vism and device acti­vism

13.09.24

10:20 – 10:35

Coffee Break

13.09.24

10:35 – 11:20

Jill van der Kamp
Afke Wieke Betten
Lotte Krab­ben­borg (Nijme­gen, NL)

#Living­With­Can­cer. How women with incu­ra­ble cancer discuss and inter­pret biome­di­cal know­ledge on Insta­gram

13.09.24

11:20 – 12:05

Leonie Winter­pacht (Tübin­gen, D)

(In)visi­bi­lity of people with disa­bi­li­ties/chro­nic illnes­ses in the digi­tal realm

13.09.24

12:05 – 12:30

Joint Discus­sion

13.09.24

12:30 – 13:00

Closing Discus­sion and Fare­well